VicCHILD: Victorian Childhood Hearing Impairment Longitudinal Databank
VicCHILD: Unlocking the secrets of hearing loss
VicCHILD is the Victorian Childhood Hearing Impairment Longitudinal Databank. It’s a Victorian register and research databank of children born with permanent hearing loss. VicCHILD ultimately aims to help children with permanent hearing loss reach their full developmental potentials.
Over 1150 families have already contributed data to VicCHILD. The information collected and stored will: help researchers and health professionals gain a better understanding of the causes and outcomes of childhood hearing loss; help researchers understand why some children with a hearing loss do well, while others face greater difficulties; and improve intervention and treatment.
Please note: VicCHILD is not a traditional longitudinal cohort study, but rather a longitudinal databank. Enrolment can occur at any age and any time, with age appropriate versions of questionnaires used. Follow-up questionnaires and assessments (if possible) are given every few years after enrolment. Therefore, not all participants have data for every “wave”.
|Study name||Victorian Childhood Hearing Impairment Longitudinal Databank|
|Current principal investigator/s||Dr Valerie Sung
Professor Melissa Wake
|Current project manager||Libby Smith|
|Cohort representative (study contact)||Libby Smith|
|Postal address||Centre for Community Child Health, The Royal Children’s Hospital, 50 Flemington Rd Parkville 3052, Victoria, Australia|
|Phone||+613 9345 4215|
|Primary Institution||Centre for Community Child Health, The Royal Children’s Hospital, Melbourne; Murdoch Childrens Research Institute|
|Major funding sources||
The Royal Children’s Hospital Foundation – RCHF
The Murdoch Childrens Research Institute – MCRI
|Key reference||Sung, V., Smith, L., Poulakis, Z., Burt, R. A., Carew, P., Tobin, S., & Wake, M. (2019). Data resource profile: The victorian childhood hearing impairment longitudinal databank (vicchild). International Journal of Epidemiology, 48(5), 1409-1410h. doi.org:10.1093/ije/dyz168|
|Are data available outside study team?||Researchers, students, and data users can request access to de-identified VicCHILD data for ethically approved research projects. To request access to VicCHILD data, please complete the formal request process via LifeCourse.|
|Study focus||To provide a register and population-based longitudinal research databank of Victorian children born with a permanent hearing loss to create a unique resource for advancing research in hearing loss. Specific objectives are to facilitate population-based research (including data linkage) that will describe secular trends in outcomes over time for repeated birth cohorts; support population-based quality improvement activities over time; identify and quantify biological and psychosocial factors that predict outcomes; and facilitate randomised controlled trials of new management and treatment approaches.|
|Sampling frame||Since 2012, participants have been recruited via the Victorian Infant Hearing Screening Program (VIHSP). Retrospective recruitment was undertaken for babies born in the years 2005 to 2011 and prospective recruitment of babies born from 2012. All families whose child had been diagnosed with a permanent hearing loss were invited. Between 2012 – 2013, families who participated in a previous cohort with congenital hearing loss (SCOUT, born 2003 to 2004) were also invtied to participate. Since 2015, participants have also been recruited via the RCH Clinical Service (Caring for Hearing Impaired Children (CHIC) Clinic).|
|Commencement sample||1150 as of December 2021|
|Ethics approvals or requirements?||
VicCHILD has ethical approval from The Royal Children’s Hospital (RCH) Human Research Ethics Committee (HREC). The RCH HREC is constituted and operates in accordance with the NHMRC National Statement on Ethical Conduct in Research Involving Humans 2007 (updated 2018). Participants or their parent/guardian (dependent on age appropriateness) provide detailed consent before any information or samples are collected. Families are able to specify which types of data they would like to contribute to VicCHILD (e.g., a family can provide consent to link their child’s data, and decline to contribute a genetic sample).
|Wave||Year||Age (mean, range)||Eligible sample|
|Enrolment||2011 – Ongoing||3 months – 8 years||IN PROGRESS|
|2 year old follow-up||2012 – Ongoing||20 – 30 months||IN PROGRESS|
|5 – 7 year old follow-up||2014 – Ongoing||5 – 8 years||IN PROGRESS|
|9 – 12 year old follow-up||2012 – Ongoing||9 – 12 years||IN PROGRESS|
|COVID-19 Survey||2020||3 months – 17 years||N(Total)=493|
|COVID-19 Follow-up Survey||2021||1 – 18 years||N(Total)=362|